Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study

Aline C Stolk-Vos; Hamasa Kasigar; Karlijn J Nijmeijer; Tom O Missotten; Jan J Busschbach; Joris J van de Klundert; Leonieke W Kranenburg

doi:10.1186/s12886-020-01388-y

Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study

Aline C Stolk-Vos, Hamasa Kasigar, Karlijn J Nijmeijer, Tom O Missotten, Jan J Busschbach, Joris J van de Klundert, Leonieke W Kranenburg

Onderzoeksoutput: Bijdrage aan tijdschrift › Artikel › Onderzoek › peer review

Samenvatting

PURPOSE: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment.

METHODS: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti.

RESULTS: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors.

CONCLUSION: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

Originele taal-2	Engels
Pagina's (van-tot)	125
Tijdschrift	BMC Ophthalmology
Volume	20
Nummer van het tijdschrift	1
DOI's	https://doi.org/10.1186/s12886-020-01388-y
Status	Gepubliceerd - 30 mrt. 2020

Toegang tot document

10.1186/s12886-020-01388-yLicentie: CC BY

Citeer dit

@article{f0dd6f73474d45ca8fff3c743171e66e,

title = "Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study",

abstract = "PURPOSE: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment.METHODS: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti.RESULTS: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors.CONCLUSION: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.",

author = "Stolk-Vos, {Aline C} and Hamasa Kasigar and Nijmeijer, {Karlijn J} and Missotten, {Tom O} and Busschbach, {Jan J} and {van de Klundert}, {Joris J} and Kranenburg, {Leonieke W}",

year = "2020",

month = mar,

day = "30",

doi = "10.1186/s12886-020-01388-y",

language = "English",

volume = "20",

pages = "125",

number = "1",

}

TY - JOUR

T1 - Outcomes in patients with chronic uveitis

T2 - which factors matter to patients? A qualitative study

AU - Stolk-Vos, Aline C

AU - Kasigar, Hamasa

AU - Nijmeijer, Karlijn J

AU - Missotten, Tom O

AU - Busschbach, Jan J

AU - van de Klundert, Joris J

AU - Kranenburg, Leonieke W

PY - 2020/3/30

Y1 - 2020/3/30

N2 - PURPOSE: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment.METHODS: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti.RESULTS: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors.CONCLUSION: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

AB - PURPOSE: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment.METHODS: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti.RESULTS: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors.CONCLUSION: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

U2 - 10.1186/s12886-020-01388-y

DO - 10.1186/s12886-020-01388-y

M3 - Article

C2 - 32228570

SN - 1471-2415

VL - 20

SP - 125

JO - BMC Ophthalmology

JF - BMC Ophthalmology

IS - 1

ER -

Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study

Samenvatting

Toegang tot document

Vingerafdruk

Citeer dit