Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study

Aline C Stolk-Vos, Hamasa Kasigar, Karlijn J Nijmeijer, Tom O Missotten, Jan J Busschbach, Joris J van de Klundert, Leonieke W Kranenburg

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Abstract

PURPOSE: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment.

METHODS: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti.

RESULTS: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors.

CONCLUSION: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

Original languageEnglish
Pages (from-to)125
JournalBMC Ophthalmology
Volume20
Issue number1
DOIs
Publication statusPublished - 30 Mar 2020

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    Stolk-Vos, A. C., Kasigar, H., Nijmeijer, K. J., Missotten, T. O., Busschbach, J. J., van de Klundert, J. J., & Kranenburg, L. W. (2020). Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study. BMC Ophthalmology, 20(1), 125. https://doi.org/10.1186/s12886-020-01388-y